Everyone thought the baby would die soon. The nurses even did not care washing it or putting it on scales. Neither did they remove the liquid from the throat of the baby. The parents brought no clothes for the little one besides the one they planned on burying him in. But little Bentley refused to give up and kept on crying.
The larger part of his brain grew on the outside of the head. In most cases, doctors just cut off these tissues, but in the case of Bentley, too much of brain was outside. Cutting it off would have killed the boy.
Hospital’s surgeon has never dealt with such a situation before. He could not find anything like this in any of the books he had. The baby’s brain was covered with skin, and it got more and more stretched and pulled every day. The pressure in the brain grew because the brain developed and increased in size. If the skin cracked, Bentley would die from an infection.
The surgery was perilous. The extra brain was too large to put it back into the skull. Doctors could guarantee nothing.
Bentley’s parents turned to Boston clinic for help. This place got a new surgical department worth over 12 million dollars. But even the new fantastic equipment did not give much hope. There was only one thing to do to try and save the baby’s life.
Doctor John Mayra planned a unique surgery. They had to make several cuts in the skull and move the bones apart to create more space for the brain. Doctor decided to use the bones from other parts of the skull to do that.
Dr. Mayra even printed out a 3D skull model to see, how it would work. Finally, Bentley was successfully operated. Surely, he had to go through a lengthy treatment afterward.
Here is what parents say about it:
“We have always been a good couple. But never before we faced anything so tough.”
No one really knows if the baby’s brain would function alright. Most of such kids are delayed in their development. They know for sure that the part of Bentley’s brain that was on the outside was responsible for his sight. The boy can see, but they do not know how well.
The mother says:
“No one knows how Bentley would develop. He is special. However, what we have is a blessing. He is our gift.”
Baby’s father Destin has peace in his heart.
“I am not afraid of anything after this.”
Praise teh Lord for saving the life of this stubborn baby, who was so determined to survive the worst nightmare in his life!