- A woman who suffers from an immunological condition needs to live in a sealed room
- She has a severe form of Cell Activation Syndrome
- 1 to 15% of the world population could develop some sort of MCAS
A woman who has been suffering from Cell Activation Syndrome (MCAS) for over a year, has to remain confined to one bedroom, sealed off from the world, including being isolated from her own husband.
PAY ATTENTION: Get all the latest news on YEN.com.gh
29-year old Johanna Watkins has the most severe form of this immunological condition, which means she is highly allergic to almost everything. Not only dust and food create terrible reactions in her, but also sunlight and other people.
Before her ordeal began, Johanna was an active woman who loved hiking and biking, but she now spends her day trapped in a sunless room sealed in plastic, reading the Bible and praying. The only way she can communicate with her husband, Scott, is through Skype.
The couple –who married in 2013– has been living with their neighbors, who offered to give them assistance. Johanna sleeps in the master bedroom, they put themselves in another room, and their four children are, for the time being, sleeping all together.
Johanna and Scott set up a GoFundMe page, in order to raise the necessary funds to get a house of their own, specially equipped for her needs. They have already raised more than $100,000, which they are using to renovate their new home, with the help of family and friends.
The only time Johanna leaves her room is for hospital appointments, when both she and Scott wear masks. MCAS has no cure, but it is normally treatable. Nevertheless, Johanna's case is too severe.
The doctor who finally diagnosed Johanna with MCAS was Dr. Lawrence Afrin, from the University of Minnesota. The specialists are trying to find a treatment that can help her, because the normal medicine used for these cases have not been effective in Johanna’s case.
1 to 15% of people in the world could suffer some form of MCAS, but most are misdiagnosed. Instead they are told they have other disorders like fibromyalgia, irritable bowel syndrome and chronic fatigue.
People with MCAS can develop rashes, inflammation, bone pain, vomiting and fainting.